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What do you say to parents who have a child with disability, who requires constant care, when you can see a defeated look on their face with dead eyes?


In the journey of parenting, there are moments that define the depth of love and resilience a person can embody. Yet, for parents of children with disabilities who require constant care, the challenges can sometimes feel insurmountable, leaving them with a heavy heart and a defeated look in their eyes.


It's in these moments that our words carry profound weight. How do we approach these parents? What do we say when words seem inadequate in the face of their struggles? Here are some reflections:


1. Acknowledge Their Strength: Begin by recognizing the incredible strength and resilience they demonstrate every day. Let them know that you see their unwavering dedication and admire their courage in facing each challenge head-on.


2. Offer Support, Not Pity: Instead of offering empty platitudes or pity, extend genuine support. Ask them how you can help, whether it's through lending a listening ear, providing practical assistance, or simply being present during difficult times.


3. Normalize Their Feelings: Remind them that it's okay to feel overwhelmed, exhausted, or even defeated at times. Parenting a child with a disability can be emotionally taxing, and it's important for them to know that their feelings are valid and understood.


4. Encourage Self-Care: Encourage them to prioritize self-care and seek out moments of respite whenever possible. Remind them that taking care of themselves is not selfish but essential for their well-being and ability to continue providing care for their child.


5. Celebrate Small Victories: Celebrate every milestone, no matter how small. Whether it's a moment of progress in their child's development or simply getting through a particularly challenging day, acknowledge and celebrate these victories with them.


6. Connect Them with Resources: Offer to connect them with support groups, counseling services, or resources within the community that can provide additional assistance and guidance. Sometimes knowing that they're not alone in their journey can make all the difference.


7. Remind Them of Their Impact: Lastly, remind them of the profound impact they have on their child's life. Their love, patience, and unwavering dedication are shaping their child's world in ways they may not even realize.


In the end, it's not always about finding the perfect words to say but rather about showing up with empathy, compassion, and a willingness to support however we can. Let's be the light in the darkness for these parents, offering hope and encouragement as they navigate the complexities of raising a child with a disability.

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